Postpoliomyelitis syndrome

Get in touch with RARE Concierge.

Contact RARE Concierge

Synonyms: Postpolio sequelae | Postpolio syndrome | Postpoliomyelitic syndrome | Postpoliomyelitis sequelae

Postpoliomyelitis syndrome (PPS) is a neurologic disorder characterized by the development of new neuromuscular symptoms such as progressive muscular weakness or abnormal muscle fatigability occurring in survivors of the acute paralytic form of poliomyelitis (see this term) 15-40 years after recovery from the disease and that is unexplained by other medical causes. Other manifestations that can occur gradually include generalized fatigue muscle atrophy muscle and joint pain intolerance to cold and difficulties sleeping swallowing or breathing.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on Data version July 2024

Newly diagnosed with
Postpoliomyelitis syndrome?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Advocacy Organizations

Association Aux Pas du Coeur – Côte d’ivoire

Our organization wants to raise awareness and recognition of rare diseases in Ivory Coast. Our mission is to: Raise awareness and campaign to help with the diagnosis and free therapeutic care of patients. Request and/or contribute to actions relating to the training of the medical profession to be able to make a final diagnosis and ensure continuous monitoring of patients easily.

Project CASK

VISION Project CASK believes in a world free of the life limitations and debilitating effects of CASK gene disorders. ​MISSION To accelerate breakthroughs in research to develop treatments and a cure for CASK gene disorders. ​VALUES Collaboration. Transparency. Urgency.

patriot for growth and development initiative

Patriots for Growth and Development Initiatives (PGDI), is a non-governmental and civil society organization that is dedicated to promoting sustainable development and poverty reduction in Nigeria and beyond. Founded in 2017 and registered with the Corporate Affairs Commission (CAC) in Nigeria, PGDI is committed to contributing to the attainment of the United Nations Millennium Development Goals

Don't see your organization here. Let us know here.

Clinical Trials

For a list of clinical trials in this disease area, please click here.