Primary central nervous system lymphoma

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Primary central nervous system lymphoma

Synonyms: PCNSL | Primary CNS lymphoma | Primary brain lymphoma

Primary central nervous system lymphoma (PCNSL) is a rare nervous system tumor predominantly due to diffuse large B-cell lymphoma that involves brain leptomeninges eyes or rarely spinal cord in the absence of systemic diffusion at the time of diagnosis. It is characterized by a solitary tumor that depending on its location can lead to a variety of symptoms such as headache nausea vomiting (and other signs of raised intracranial pressure) focal neurologic deficits neuropsychiatric and ocular symptoms seizures and personality changes.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.

Reference: Access aggregated data from Orphanet at Orphadata.

Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version March 2024

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Advocacy Organizations

My Faulty Gene

My Faulty Gene is a nonprofit organization which provides information and assistance to any individual whose family medical history suggests genetic testing might be helpful in identifying an increased risk of disease due to a genetic mutation. We believe that everyone in need of genetic testing should have access to it.

My Little Sunshine Foundation

My Little Sunshine is a non-profit foundation dedicated to educating people about the importance of fertility preservation and making fertility resources accessible to all.

SALUS

Educate and provide resources to POC with Rare Cancers

Youth And Women for Opportunities Uganda-YWOU

Our mission supports Rare, orphan and undiagnosed diseases diagnosis, care and treatment, education, awareness and empowering health care professionals and patients care takers of rare, orphan and undiagnosed diseases arena in Uganda, build capacity and bridge lack of clinical knowledge and experience and provide search/quest for diagnostic laboratories, I advocate for changes in laws, practices

Clinical Trials

For a list of clinical trials in this disease area, please click here.