Spontaneous intracranial hypotension

Get in touch with RARE Concierge.

Contact RARE Concierge

Synonyms: Spontaneous cerebrospinal fluid leak

A rare headache resulting from a cerebrospinal fluid (CSF) leak with subsequent lowered CSF pressure characterized clinically by severe headaches which typically worsen upon standing up and get better when lying down. Additional features may include neck stiffness nausea vomiting vertigo tinnitus visual disturbances and cognitive abnormalities among others as sagging and displacement of the brain can lead to a variety of lesions and symptoms.

Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version May 2024

Newly diagnosed with
Spontaneous intracranial hypotension?

Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.

Get Concierge Help

Advocacy Organizations

Don't see your organization here. Let us know here.

Clinical Trials

For a list of clinical trials in this disease area, please click here.