RARE Drug Development Symposium

Hosted by Global Genes and the Orphan Disease Center, this event equips advocates with the knowledge, skills and connections they need to advance therapy development for their communities.  Join us April 29-May 1 in Philadelphia.

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Upcoming Global Genes Events



Events Overview

Browse and find upcoming Global Genes in-person or virtual RARE disease events by date and location hosted around the world. Make everlasting connections

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Past Global Genes Events

RARE Drug Development Symposium 2023

The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills and connections they need to advance therapy development for their communities. The 2023 event focused on collaboration – the foundation of success in rare disease research.

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RARE Patient Advocacy Summit 2022

The Summit forged meaningful connections with others in the rare disease community for future collaboration. Sessions provide attendees with insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and actionable strategies they can take home and implement immediately to accelerate change.

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RARE Health Equity Summit 2022

The RARE Health Equity Forum, hosted in partnership with the Rare Disease Diversity Coalition (RDDC) convenes rare disease stakeholders to identify collaborative efforts to address inequities in the care of patients with rare diseases. This event provided attendees with strategic insights and tools to empower and equip them to address racial, ethnic, gender, socioeconomic, and other disparities.

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