As the largest gathering of rare disease patients, caregivers, thought leaders and other rare disease stakeholders in the world, the RARE Patient Advocacy Summit is an unparalleled opportunity to forge meaningful connections with other rare advocates and take home actionable strategies and tools to accelerate change.

This year, the Summit will take place in San Diego at the Sheraton San Diego Hotel & Marina.

After leaving this conference, I felt empowered to make a difference not only for myself and the Narcoleptic community but to engage with other people of rare disease, to work together, support each other, network and raise our voices for better futures for all of us. – Shannon Burkoth

Your Summit Experience

» A jam-packed, two-day program filled with TED-style keynotes and five tracks of compelling educational content ranging from the latest in care to cutting-edge research and therapies.

» 100 exhibits featuring programs and services for the rare disease community.

» Workshops, dinners and networking activities to inspire conversations and spark collaborations.

» The Summit app with the tools to help you navigate session tracks like a pro, communicate and network with Summit attendees from around the world.

» The awe-inspiring RARE Champion of Hope Celebration honoring the individuals who are relentless in their efforts to affect change for the rare disease community through advocacy, collaboration and medical care and treatment.

Hotel Room Block: 

Our room block at the Sheraton San Diego Hotel & Marina is currently sold out for the night of Tuesday, September 17. For assistance please contact the events team.

*The Sheraton San Diego Hotel & Marina room block cut-off date is Tuesday, August 27.

More questions? Check out our FAQs.

From: 09/18/2019 - To: 09/20/2019

08:00 AM - 05:00 PM UTC-12:00

1380 Harbor Island Drive, San Diego, California, United States of America

Keynote Speaker

2019 Champion Sponsor

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2019 Exhibitor Pavilion Sponsor

2019 Presenting Sponsor

2019 Title Sponsor

2019 Platinum Sponors

2019 Gold Sponsors

2019 Silver Sponsors

Partners

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