RARE Champions of Hope Celebration
September 13, 2022
Groundbreakers. Leaders. Advocates. The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champions of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders.
Nominations for your 2022 RARE Champions of Hope has concluded.
All nominees will receive a pin and be celebrated for their contributions on social media. Nominees selected as the RARE Champion in their category will be announced in July and recognized at our Champions of Hope Awards Dinner during the RARE Patient Advocacy Summit in San Diego on Tuesday, September 13, 2022.
RARE Champion in Industry – This award honors Industry partners in the pharmaceutical and biotechnology space who are recognized as exceptional partners. These nominees display collaborative efforts in engaging with rare disease communities and stakeholders while driving change for therapies in the rare disease space.
RARE Champion in Medical Care and Treatment – This award is honoring those medical and healthcare professionals who are recognized innovators in clinical care and treatment for rare disease. Nominees display excellence in engaging with patients and families to optimize care and treatment, act as a leader in medical care, and are recognized experts for a specific patient population.
RARE Champion in Science and Technology – RARE Champions in Science and Technology celebrates researchers who are trailblazers and leaders in disease-specific research, drug development, and scientific processes. This person or group of people use an innovative approach to develop effective treatments to advance research for a specific rare disease community. Nominees should be conducting patient-driven research, research in academia, industry, or within an advocacy organization.
RARE Rising Star – RARE Rising Star recognizes inspirational young individuals in rare disease or within the general public who are advocates involved in a program, event, or legislative effort to bring awareness to rare disease patients, their families, or community. Nominees can be patients or champions for patients.
RARE Founder’s Award – The RARE Founder’s Award recognizes individuals who have demonstrated a devotion to the ideals of the founder of Global Genes. These individual nominees exhibit their commitment to connecting, empowering, and inspiring the rare disease community through their lifetime contributions and achievements advocating for people living with rare disease.
RARE Champions of Hope Awards Ceremony Detail
Champions of Hope will be recognized at our Champions of Hope Awards Dinner happening during the RARE Patient Advocacy Summit at the Town & Country San Diego on Tuesday, September 13, 2022 (available virtually on Facebook as well). The evening will kick off on the Flamingo Lawn with the Blue Carpet and cocktail reception, followed by dinner, awards, entertainment, dancing, and dessert in the ballroom. Suggested dress code is cocktail attire. A brief schedule of events is below.
In Person Schedule of Events
6:00pm: Check in opens
6:30pm – 7:15pm: Blue carpet & cocktail reception
7:30pm – 8:30pm: Awards ceremony & dinner
8:30pm – 9:00pm: Live entertainment
9:00pm – 10:00pm: Dancing & dessert