Events
RARE Health Equity Forum
September 18, 2023 – September 19, 2023
About the Health Equity Forum
The RARE Health Equity Forum, hosted by Global Genes in partnership with the Rare Disease Diversity Coalition (RDDC) convenes all stakeholders in the rare disease community to identify collaborative efforts to address inequities in the care of patients with rare diseases, specifically focusing on reducing disparities, discrimination, and biases felt by patient communities based on factors including socioeconomic status, ability, geographic location, religion, race, ethnicity, gender identity and/or language.
Through plenary sessions, networking and interactive workshops, this event empowers attendees to advocate for more inclusion in the rare disease community and provides them with strategic insights and tools to support underserved and/or underrepresented patients.
Hear from experts who were at the RARE Health Equity Summit last year
What did those who attended the 2022 event have to say?
“This whole event was amazing and so well organized. Usually there are a couple of sessions I’m not interested in but I never wanted to leave because every session was so good and interesting!”
– Nicole Kressin, Rare Diseases Clinical Research Network
“One of the best meetings I’ve been to this year – I was really impressed by the level of presentations and by how much I learned and how much others learned.”
– Eve Dryer, Travere Therapeutics
“Thank you for doing this. I’ve met so many wonderful people –
it gives me hope!”
– Yasmina Halim, Patient Advocate
2023 Health Equity Forum Agenda
Through plenary sessions, networking and interactive workshops, this event empowers attendees to advocate for more inclusion in the rare disease community and provides them with strategic insights and tools to support underserved and/or underrepresented patients.
Check back with us soon to see the agenda for 2023!
