Events

RARE Health Equity Forum

September 28, 2024

View 2023 Agenda

About the Health Equity Forum

The RARE Health Equity Forum convenes stakeholders in the rare disease space to identify ways in which we can better serve marginalized populations within the rare disease community.

Over the past three years we have worked as a community to learn about, and discuss the biases, barriers and challenges that marginalized communities face within rare disease, and provided actionable tools and strategic insights to support these communities.

The 2024 Health Equity Forum will be part of Week in RARE again, and this time, we will see you in Kansas City, Missouri on September 28, 2024! Look for more information soon.


A Look Back at the 2023 RARE Health Equity Summit

2023 Recap

Check out some stats from our event last year

2023 Health Equity Forum Stats

Thank you to our 2023 Health Equity Forum sponsors!

Presenting Sponsors

travere logo

Gold Sponsor

Silver Sponsors

Bronze Sponsors

Amicus Therapeutics
Avidity Biosciences
Blueprint Medicines
marinus
merck
pharming
Spark Therapeutics
Vertex

Partner Sponsors

Biogen
moderna

Patient Advocate Sponsors

Chiesi global rare diseases
Ultragenyx

Media Sponsor

Interested in supporting the 2024 RARE Health Equity Forum?