RARE Health Equity Summit

November 9, 2022 – November 11, 2022

2022 RARE Health Equity Summit
Partners in Action

November 9-11, 2022
Atlanta, GA (and virtually!)

Presented in partnership with the Rare Disease Diversity Coalition (RDDC), the RARE Health Equity Summit brings together stakeholders in the rare disease community to identify the challenges that disproportionately affect underrepresented populations and define collaborative efforts to address those inequities.

Sessions will focus on:

    • reducing racial disparities in care
    • building more inclusive research programs
    • addressing bias and barriers to genetic testing
    • learning cultural humility to create an inclusive and equitable environment for all members of the rare disease community

This event will provide attendees with strategic insights and tools to empower and equip them to address racial, ethnic, gender, socioeconomic, and other disparities. The outcomes of the RARE Health Equity Summit will help attendees advocate for more inclusion in the rare disease community, and will provide relevant resources and information to support underrepresented and/or minoritized patients.

National Center for Civil and Human Rights

On Thursday, November 10th, Global Genes and RDDC will host a reception at the National Center for Civil and Human Rights to bring event attendees and the Atlanta community together for a night of hors d’oeuvres and history. Guests will be able to network with their peers while being immersed in the history of the U.S. civil rights movement, stories from the struggle for human rights around the world today, and artifacts of Dr. Martin Luther King, Jr., whose words still ring true: “Of all the forms of inequality, injustice in healthcare is the most shocking and inhumane.”

You can register for the reception when you register for the Summit. Please note that the reception is an additional $25 fee.


Register Now  View Agenda


Hear from experts who were at the RARE Health Equity Summit last year


For more information, please download our event prospectus here.

To learn more about last year’s Summit, read our summary report here