Press Releases

Global Genes® Expands Board of Directors & Medical and Scientific Advisory Board To Amplify Efforts for Rare Disease Community

December 8, 2016

ALISO VIEJO, Calif. — December 8, 2016 — Global Genes®, one of the world’s leading nonprofit rare disease patient advocacy organizations, is pleased to announce the addition of key leaders and influencers to its Board of Directors and Medical and Scientific Advisory Board.
“Global Genes has entered into a time of significant growth, and with that comes the need for expanded guidance and expertise,” said Nicole Boice, CEO Global Genes. “As we prepare for the road ahead and embrace our roles and responsibilities to rare disease patients and families, it is critical that we bring together some of the best minds in the industry.”
Joining the Global Genes Board of Directors is Nauman Shah, Vice President, Enterprise Program Office Management of Johnson and Johnson. In addition, Global Genes is proud to announce the appointments of Wendy White, Sr VP Rare Diseases Dohmen Life Science Services, and former President Healthcare Business Women’s Association, as Global Genes Chairman of the Board, and Natalie Douglas, CEO Healthcare at Home as Vice Chairman of the Board.
Global Genes Medical and Scientific Advisory Board (MSAB) welcomes Robert Ring, former CSO of Autism Speaks with 16 years of experience in executive, strategic and technical leadership roles in the pharmaceutical, non-profit and venture philanthropy sectors. Also joining Global Genes MSAB are Marissa Brash, DrPH, MPH, CPH, and Jeffrey Sherman, MD, FACP, of Horizon Pharma. Dr. Brash is an Assistant Professor in the School of Nursing at Azuza Pacific University (APU) and Program Director for the Public Health Masters and Doctoral Programs at APU, and Dr. Sherman serves as Global Genes® Expands
Board of Directors & Medical and Scientific Advisory Board To Amplify Efforts for Rare Disease Community Horizon Pharma’s
Executive Vice President, Research and Development, and Chief Medical Officer. As Global Genes continues to grow, adding support and expertise is a key objective necessary to help ensure that the organization meets its long-term goals. Global Genes will be looking to identify additional board members with experience in technology,consumer brands, consumer & digital marketing, and those that are devoted healthcare philanthropists.
For the full list of Board of Directors please visit:
For the full list of MSAB members please visit:
About Global Genes – Allies in Rare Disease
Global Genes is a leading global rare disease patient advocacy organization. The mission is to eliminate the challenges of rare disease, by providing patients with educational tools, building awareness, providing critical connections and support to people and resources, and through investment in technologies that will positively impact affected patients and families. Recognized worldwide by the Blue Denim Genes RibbonTM, Global Genes unites experts, advocates and patients of all ages to stand together in hope for treatments and cures for the estimated 7,000 rare and genetic diseases that impact approximately 30 million Americans and over 350 million people worldwide.