2026 RAD Brain Workshop
January 27 – 29, 2026 – POSTPONED
Boston, MA
The RARE Advocate Development (RAD) Brain Workshop is a three-day intensive meeting focused on the development of CNS therapies. This small-group format educational meeting is designed for rare disease patient advocates who are accelerating research in their neurological condition, and have already started funding and engaging directly in research projects, with the aim for all attendees to become more confident in addressing a rare drug development or research-related goal for their community.
This program is a collaborative program delivered by Global Genes, Rare Epilepsy Network (REN) and Mahzi Therapeutics. The event is open to all REN member advocacy groups.
The RAD Brain Workshop 2026 was originally scheduled for 27 – 29 January 2026 in Boston at Alexion, AstraZeneca Rare Disease. Due to extreme weather conditions in the US, the workshop is being postponed. New dates will be announced soon.
The 2026 Boston event is full.
To join the waitlist or if you have questions about the event, email [email protected].
Agenda
January 27 – 29, 2026
Session topics include:
- Overview of Drug Development and Therapy Modalities
- Brain Structure & Function
- In Vitro and In Vivo Models
- Clinical Trial Readiness: Registries, Natural History Studies, Biomarkers & Endpoints
- Clinical Trial Design
- Regulatory Strategy
- Manufacturing Strategy
- Intellectual Property & Licensing
- Finance & Partnering
- Half-day Session on Drug Repurposing
- Case Studies
- Presentation Skills
The RAD Brain Workshop 2026 is a collaborative program brought to you by
Thank you to our 2026 sponsors!
