RARE Champions of Hope

RARE Champion in Advocacy (Organization) – This award recognizes a patient advocacy group/organization that has created innovative programming and/or successful partnerships to support, educate, research or enable their communities in meaningful and impactful ways. 

RARE Champion in Advocacy (Individual) – This award recognizes an individual rare disease patient or advocate who has created innovative programming and/or successful partnerships to support, educate, research or enable their communities in meaningful and impactful ways. 

RARE Champion in Industry – This award recognizes partners from biopharma who have demonstrated exceptional partnership in the rare disease space, launched innovative programming or pioneered new processes for engaging the patient community. Nominations in this category should include concrete examples and metrics to indicate what the initiative was, how it was successful and the impact it had on those being served. 

RARE Champion in Research – This award recognizes trailblazers and leaders in rare disease research, drug development and scientific processes who have taken an innovative approach to advance outcomes for the rare disease community. Nominees in this category should be conducting patient-driven research, research in academia or research within an advocacy organization. 

RARE Champion in Health Equity – This award recognizes an individual rare disease patient or advocate who has created innovative programming and/or developed meaningful approaches to tackle the systemic and organizational challenges that contribute to an inequitable rare disease community. Nominations in this category should include the disparity the nominee is working to address, the underserved community the nominee is working to empower, and the impact the individual / their program has had on the identified community.

Thank you to all who nominated a RARE Champion of Hope. Nominations are now closed.