Rare disease patient advocates are taking the lead in research like never before, driven by the urgent need for new treatments. The RARE Drug Development Symposium hosted by Global Genes in partnership with Boston Children’s Hospital is designed to equip advocates with the knowledge, skills, and connections to navigate early-stage research with confidence. Whether you’re initiating research efforts or looking to refine your strategy, this symposium offers practical insights to accelerate progress in research strategies and activities.
Wednesday, September 3 – Thursday, September 4
All general sessions will be available to Live Stream via Zoom.
AGENDA
Wednesday, September 3, 2025
Sessions from 9am – 3:15pm ET
Thursday, September 4, 2025
Sessions from 9am – 3:00pm ET
Wednesday, September 3, 2025
9am – Welcome
9:15am – 10:15 am ET – Session 1
10:30am – 11:30am ET – Session 2
11:45am – 12:45pm ET – Session 3
2:15pm – 3:15pm ET – Session 4
Thursday, September 4, 2025
9am ET – Day 1 Recap
9:15am – 10:15 am ET – Session 5
2:00pm – 3:00pm ET – Session 6
Virtual Registration
Live Stream Pricing
Patient/Advocate/Caregiver: $25
Academic/Researcher/Government/Healthcare Professional: $50
Corporate/Industry: $250
For questions about the live stream, contact [email protected]
Live Stream brought to you by
The live streamed sessions will be available to watch on our website after the event.
Thank you to our 2025 Sponsors!
