Numbers
RARE Disease Facts
You are not alone. These RARE facts show the impact of rare disease. Share these statistics with your communities to let them know that RARE really is everywhere.
RARE Diseases Impact More People Than
Cancer and AIDS Combined
1 in 10
People are Affected by Rare Disease
400
Million People Suffer From a Rare Disease Globally
8 in 10
Rare Diseases are Genetic
95%
of Rare Diseases Lack an FDA Approved Treatment
7 in 10
Rare Diseases Start in Childhood
10,000+
Distinct types of Rare and Genetic Diseases
6+ Years
The Average Time it Takes for Rare Patients to Receive an Accurate Diagnosis https://everylifefoundation.org/delayed-diagnosis-study/
Up to $517,000
The economic impact of a delayed diagnosis is up to $517,000 in avoidable costs per patient.