RARE on the Road is a rare disease leadership series hosted by Global Genes and the EveryLife Foundation for Rare Diseases. These events provide critical education and insight into the rare disease community. This traveling leadership and educational series helps equip attendees with the knowledge on advocating for yourself, in your local and rare disease community, as well as how to advocate on a legislative level. The events aim to activate the rare disease community at a local level and empower patients and caregivers with knowledge and insight to better serve their rare community.
2020 RARE on the Road locations will be announced soon!