RARE Daily

Horizon Opens Applications for #RAREis Global Advocate Grant Program

March 2, 2023

Rare Daily Staff

Horizon Therapeutics opened applications for its 2023 #RAREis Global Advocate Grant, which are designed to support advocates addressing rare disease community needs.

The #RAREis grant will provide 50 groups with a one-time $5,000 grant. The 2023 effort represents a $100,000 increase over the previous year in which the company awarded 30 grants to advocacy organizations.

The #RAREis Global Advocate Grant expands communication and awareness for the rare disease community by providing financial assistance to patient advocacy groups working to advance, educate, and address challenges faced by rare disease families. The program aims to build equity for the rare disease community by empowering and fostering growth for small, often overlooked advocacy organizations around the world.

The 30 organizations awarded the 2022 #RAREis Global Advocate Grant were from nine countries and represented 29 unique rare diseases. Grant recipients used funding to establish new programs, develop educational resources, and expand their current offerings to support their disease communities.

Applications are available at RAREiscommunity.com/Grant. The deadline to apply is March 31, 2023.

“Rare disease advocacy is often driven at the local level, propelled by families and people touched by a rare disorder, passionate about finding a cure and providing support for their loved ones,” said Matt Flesch, vice president, communications and patient advocacy for Horizon. “The #RAREis Global Advocate Grant program provides essential one-time funding to increase the growth, reach, and impact of small, rare disease-focused non-profit organizations.”

Photo: Matt Flesch, vice president, communications and patient advocacy for Horizon

Stay Connected

Sign up for updates straight to your inbox.