RARE Daily

Stanford Medicine Children’s Health Receives Rare Disease Centers of Excellence Designation

May 12, 2023

Rare Daily Staff

The National Organization for Rare Disorders has named Stanford Medicine Children’s Health as one of its Rare Disease Centers of Excellence.

NORD grants the designation to hospitals dedicated to diagnosing, treating, and researching all rare diseases. Natalia Gomez-Ospina will serve as the Director for Stanford Children’s NORD Center of Excellence for Rare Disorders. Stanford Children’s joins the national network of 40 hospitals across the country that are caring for thousands of rare disease patients and are at the cutting edge of some of the biggest medical and scientific breakthroughs.

“No single organization can tackle caring for rare diseases alone,” says Dennis Lund, chief medical officer of Stanford Medicine Children’s Health. “We can help connect patients to specialists with the expertise that’s needed, regardless of what they’ve been diagnosed with or where they live, which is crucial to transforming their lives.”

NORD selected Stanford Children’s for this designation through a competitive application process, which looked at whether the medical center had experts across multiple specialties to meet the needs of rare disease patients, as well as its contributions to rare disease patient education, physician training, and research.

“With millions of children and families facing the unknowns of their rare disease, we see our role in accelerating advancements in diagnosis and treatments for those who are navigating the challenges of their condition as incredibly important,” Lund said.

Photo: Dennis Lund, chief medical officer of Stanford Medicine Children’s Health

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