2019 RARE Patient Impact Grant


2019 applications are now closed! 

The RARE Patient Impact Grant program is an exclusive funding opportunity for rare patient support groups and RARE Foundation Alliance partner organizations to fund projects that will make a tangible difference in the lives of rare patients and caregivers in the United States.

This program was launched at the 2015 Tribute to Champions of Hope and received close to 150 applications in its first year! Global Genes is committed to growing this signature program each year and in 2018 was able to provide more than 100k to fund projects and programs to support the communities of other foundations.

Key Dates

  • 2019 RARE Patient Impact Grant Opens – June 1, 2018
  • Application and Q&A Webinar – June 26, 2018 
  • Letter of Intent Deadline – August 10, 2018 at 11:59 p.m. PT
  • Notification of Letter of Intent Status – August 20, 2018
  • Full Application Due (accepted Letters of Intent only) – September 14, 2018 at 11:59 p.m. PT
  • RARE Support and Innovation Applicants Notified of Presentation Status – November 12, 2018
  • RARE Support and Innovation Applicant Presentations – December 3, 2018 to December 5, 2018
  • Awardees Notified – December 10, 2018


Additional information including the grant guidelines and webinar recording is available below.

grant-guideline-button  grant-app-button  



We receive many more applications that we are able to fund. Please consider making a tax-deductible donation today to support the RARE Patient Impact Grant program and make a tangible difference in the lies of patients and caregivers across the country.