Rare disease patient advocates are taking the lead in research like never before, driven by the urgent need for new treatments. The RARE Drug Development Symposium hosted by Global Genes in partnership with the Rosamund Stone Zander and Hansjoerg Wyss Translational Neuroscience Center at Boston Children’s Hospital is designed to equip advocates with the knowledge, skills, and connections to navigate early-stage research with confidence. Whether you’re initiating research efforts or looking to refine your strategy, this symposium offers practical insights to accelerate progress in research strategies and activities.
Wednesday, September 9 – Friday, September 11
All general sessions will be available to Live Stream via Zoom.
AGENDA
Wednesday, September 9, 2026
Sessions from 9:30am – 2:45pm ET
Thursday, September 10, 2026
Sessions from 8:30am – 5:30pm ET
Friday, September 11, 2026
Sessions from 8:45am – 10:45am
Wednesday, September 9, 2026
9:30am – Welcome
9:45am – 10:45am ET – Opening Fireside Chat
11:00am – 12:00pm ET – Session 1
1:45pm – 2:45pm ET – Session 2
Thursday, September 10, 2026
8:30am ET – Day 1 Recap
8:45am – 9:45am ET – Session 3
9:45am – 10:15am ET – Session 4
10:45am – 11:45am ET – Session 5
3:00pm – 4:00pm ET – Session 6
4:30pm – 5:30pm ET – Fireside Chat
Friday, September 11, 2026
8:45am – 9:15am ET – Keynote
9:15am – 9:30am ET – Session 7
9:30am – 10:45am ET – Pitch Session
Virtual Registration
Live Stream Pricing
Patient/Advocate/Caregiver: $45
Academic/Researcher/Government/Healthcare Professional: $75
Corporate/Industry: $295
For questions about the live stream, contact [email protected]
Thank you to our 2026 Sponsors!
