Featured Resources

February 5, 2019 By Global Genes
Setting Up Your RARE Portal
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January 10, 2019 By Global
The ABC’s of Advocating in the Classroom
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November 21, 2018 By Global
Building a Foundation and Your Future
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All Resources

Community Resource
February 6, 2019 By International WAGR Syndrome Association
Resource List for Rare Disease Patient Registries
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February 5, 2019 By Global Genes
Setting Up Your RARE Portal
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2018 Summit
February 5, 2019 By Global
Summit Day 2: Session 4- Patient-Centered Benefit-Risk Assessment: Why It Matters To You
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2018 Summit
February 5, 2019 By Global
Summit Day 2: Session 4- Deep Dive, Mobilizing Your Community For Patient-Focused Drug…
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2018 Summit
February 5, 2019 By Global
Summit Day 2: Innovations in SciencePresentation Brief- Project Violet, Jim Olsen, PhD
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2018 Summit
February 5, 2019 By Global
Summit Day 1: Opening Remarks and Session 1: Caregivers- Strategies to stay Afloat
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