RARE on the Road – 2018

Join Global Genes and EveryLife Foundation for Rare Diseases on tour:

June 9, 2018:  Houston, TX

June 30, 2018:  Salt Lake City, UT 

July 21, 2018:  Nashville, TN

The EveryLife Foundation and Global Genes are excited to partner for RARE on the Road, a Rare Disease Leadership Tour to bring critical education and insights to rare disease patients, caregivers and other advocates. We are uniting to build and activate the rare disease community at the local level. Whether you’re new to the rare disease community or a “seasoned veteran” this workshop will benefit you!



Gold Level Sponsors 

Silver Level Sponsors

Bronze Level Sponsors 

Hope Level Sponsors

For more information and for sponsorship questions please contact:

Carol Kennedy-EveryLife Foundation CKennedy@everylifefoundation.org

Kathy O’Connor-Global Genes kathyo@globalgenes.org

Seth Fritts-Global Genes sethf@globalgenes.org