Synonyms: Classic SPS
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version February 2026
Newly diagnosed with
Classic stiff person syndrome?
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Advocacy Organizations
Meg’s Miracles
The mission of Meg's Miracles is to help raise funds and create awareness for Stiff Person Syndrome research at The Stiff Person Syndrome Center at Johns Hopkins' Department of Neurology so that one day each and every person affected by this debilitating disease will be able to get a better treatment and eventually be cured of this disease. In addition to raising awareness, we want to be a resource of support for patients and their families battling this condition empowering them with tools to create more effective patient advocacy. This is all accomplished by educating both patients and clinicians about the disease; reminding them that they are a team and work together to create the best possible patient outcomes.
The Stiff Person Syndrome Research Foundation
Our mission is to raise awareness of Stiff Person Syndrome (SPS), to support research for better treatments and a cure for SPS, while strengthening our community through education and collaboration.
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Clinical Trials
For a list of clinical trials in this disease area, please click here.