Synonyms: ALVC | Arrhythmogenic cardiomyopathy dominant-left variant | Arrhythmogenic cardiomyopathy with left ventricular involvement | Familial isolated arrhythmogenic ventricular dysplasia, left-dominant form
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version February 2026
Newly diagnosed with
Inherited isolated arrhythmogenic cardiomyopathy, dominant-left variant?
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Advocacy Organizations
Children’s Cardiomyopathy Foundation
CCF's mission is to accelerate the search for causes and cures for pediatric cardiomyopathy through increased research, education, awareness, advocacy, and support to affected children and their families.
Heart of a Giant Foundation
The mission of the HGF is to achieve better health outcomes for heart diseases and related chronic health conditions in our communities and enhance the quality of life through health education, care support, and connection to community resources.
HeartCharged
Ending preventable deaths from undiagnosed heart conditions and sudden cardiac arrest, especially in young people, and providing patient-to-patient support.
Hypertrophic Cardiomyopathy Association
Providing support, advocacy, and education to patients, families, the medical community, and the public about hypertrophic cardiomyopathy and all thick heart muscle disorders, while supporting research and fostering the development of treatments.
Sudden Arrhythmia Death Syndromes (SADS) Foundation
The SADS (Sudden Arrhythmia Death Syndromes) Foundation mission is to save the lives and support the families of children and adults who are genetically predisposed to sudden death due to heart rhythm abnormalities. Learn More
Team Titin
Team Titin, Inc. is a 501(c)(3) nonprofit with the mission to serve those living with, caring for, or researching titin (TTN) related muscle and heart disorders. To achieve this mission, we focus on four key pillars: Connection, Advocacy, Care, and Research.
Wave of Support, Inc
Empowering those affected by bleeding disorders and other rare disease through advocacy, resources, education, and support
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Clinical Trials
For a list of clinical trials in this disease area, please click here.