Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview. Reference: Access aggregated data from Orphanet at Orphadata. Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http://www.orphadata.org. Data version April 2026
Newly diagnosed with
Giant cell glioblastoma?
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Advocacy Organizations
Cache DNA
At Cache, we are on a mission to store the biomolecules of today in order to unlock the possibilities of tomorrow. Our vision is to create a scalable, sustainable, and standardized platform for reliable storage and access of biomolecules by combining chemistry, biology, automation, and computational tools to support patient advocacy groups worldwide and better connect samples to insights.
Pediatric Brain Tumor Foundation
Since 1991, the Pediatric Brain Tumor Foundation has led in funding research, supporting families, and advocating for policies to help patients and survivors. As the largest patient advocacy funder, it drives vital discoveries, new trials, and better treatments. Guided by patient and family experiences, PBTF supports families’ needs at every stage, focusing on care of the entire family.
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Clinical Trials
For a list of clinical trials in this disease area, please click here.