Polyostotic fibrous dysplasia
Data from Orphanet are used to provide information on a disease's name, synonym(s), and overview.
Orphadata: Free access data from Orphanet. © INSERM 1999. Available on http: //www.orphadata.org. Data version September 2023.
Newly diagnosed with
Polyostotic fibrous dysplasia?
Our RARE Concierge Services Guides are available to assist you by providing information, resources and connections as you navigate your rare disease journey.
Fibrous Dysplasia Foundation dba FD/MAS Alliance
The FD/MAS Alliance’s mission is to develop evidence-based treatments and foster the well-being of individuals with FD/MAS by advancing cutting-edge research, channeling the voices of individuals with FD/MAS, and sharing information with the medical community.
The Chandler Project
The Chandler Project (TCP) provides those affected with achondroplasia, and other forms of skeletal dysplasia (dwarfism), with the latest in pharmaceutical research and surgical advancements.
Syndromes Without A Name (SWAN) Australia
Provide information, support and advocacy to families caring for a child with an undiagnosed or rare genetic condition.
For a list of clinical trials in this disease area, please click here.