August 1, 2013
Rare Disease Network Connecting Patients with Experts Highlights Hospitals’ Knowledge Base
September 21, 2011
Better Access to Patient Longitudinal Data Promises Greater Research Latitude
September 14, 2011
When Disaster Strikes, Are Your Health Records Electronic, Safe and Immediately Available?
September 12, 2011
Rare Disease Registry Contest Underway – Deadline for Submissions is Sept 30th
August 26, 2011
Guest Blog Scientific American – Innovation in Medical Diagnositics Saves Lives
August 25, 2011
‘R.A.R.E.’ BOARD OF DIRECTORS AND ADVISORS ANNOUNCED
August 17, 2011
Rare Disease Research and Integrated Systems: 1+1=3
July 5, 2011
‘THE HILL’ Reports: Help children with rare diseases get the new medicines they&hel...
June 27, 2011
Nature.com Reports – Rare Disease Studies Seek Online Giving
May 9, 2011
National Nurses Week – Thank those that work to help our kids!
April 28, 2011
CBI ANNOUNCES PARTNERSHIP WITH CHILDREN’S RARE DISEASE NETWORK AND THE GLOBAL JEANS PROJECT