August 1, 2013
Rare Disease Network Connecting Patients with Experts Highlights Hospitals’ Knowledge Base
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September 21, 2011
Better Access to Patient Longitudinal Data Promises Greater Research Latitude
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September 14, 2011
When Disaster Strikes, Are Your Health Records Electronic, Safe and Immediately Available?
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September 12, 2011
Rare Disease Registry Contest Underway – Deadline for Submissions is Sept 30th
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August 26, 2011
Guest Blog Scientific American – Innovation in Medical Diagnositics Saves Lives
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August 25, 2011
‘R.A.R.E.’ BOARD OF DIRECTORS AND ADVISORS ANNOUNCED
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August 17, 2011
Rare Disease Research and Integrated Systems: 1+1=3
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July 5, 2011
‘THE HILL’ Reports: Help children with rare diseases get the new medicines they need
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June 27, 2011
Nature.com Reports – Rare Disease Studies Seek Online Giving
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June 9, 2011
RARE DISEASE TECHNOLOGY TRENDS – ‘REGISTRIES’, JOIN US JUNE 22
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May 9, 2011
National Nurses Week – Thank those that work to help our kids!
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April 28, 2011
CBI ANNOUNCES PARTNERSHIP WITH CHILDREN’S RARE DISEASE NETWORK AND THE GLOBAL JEANS PROJECT
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