March 6, 2018
Proposed RARE Act Seeks to Address Common Challenges Rare Disease Patients Face
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December 1, 2016
21st Century Cures Act passed by the House today, OPEN ACT dropped from…
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October 11, 2016
Relapsing Polychondritis Awareness and Support Foundation Announces New Study with NIH
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September 29, 2016
New Study Investigates “Touch Blindness” as Potential Genetic Mutation
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August 11, 2016
Global Genes Provides Over $100,000 in Scholarships
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July 21, 2016
Here Goes Hannah! Girl Heads to NIH For Treatment of Giant Axonal Neuropathy
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March 12, 2016
Pompe Diagnosis Brings Relief After One Woman’s Long Search
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January 18, 2016
The National Institute for Health Releases Strategic Plan for Fiscal Years 2016-2020
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January 14, 2016
NIH Releases Statement on the FY2016 Omnibus Bill
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January 8, 2016
PTC Therapeutics and Massachusetts General Hospital Collaborate on Rare Disease Research
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September 27, 2015
NIH Helps Family Finally Achieve a Rare Diagnosis for Two Brothers
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May 22, 2015
A Message From Global Genes About 21st Century Cures
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