Our Team

We’re led by a team of passionate people who strive to empower the rare disease community. Get to know us.

Team

Craig Martin

Tim Ehrhard

Senior Director, IT

Lauren Alford

Senior Director, Marketing & Communications

Kathy O’Connor

Director, Corporate Engagement

Maria Della Rocca

Senior Director, Patient Services

Patrice Melluso, CMP, HMCC

Director, Meeting & Events

Daniel DeFabio

Director, Community Engagement

Shruti Mitkus, PhD

Director, Genetic Education and Navigation

Lara Bloom

Strategic Advisor

Lisa James

Associate Director, Strategic Advancement

Nikki Berry

Senior Manager, Brand

Pam Todd

Educational Resource Strategist

Rachel Barron

Senior Manager, Patient Programs

Katherine Lim

Senior Manager, Digital Marketing

Parvathy Krishnan

Director, Foundation Alliance

Sravanthi Meka

Senior Manager, Content Marketing

Irie Long

Senior Project Coordinator

Frieda Hernandez

Manager, Engagement Programs

Kristin Soto

Manager, Development

Mary Morlino

RARE Concierge Patient Services Manager

Shankar Ramkellawan

Kayla Chandler, CMP

Associate Manager, Meetings and Events

Scarlett Leone

Project Manager, Events

Effie Parks

Community Engagement Coordinator

Shelby Carney

Program Manager

Claire Macht

Program Manager

Nick Ehly

Program Coordinator

Mindy Gikas

Human Resources Advisor

Board of Directors

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