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Our Team

We’re led by a team of passionate people who strive to empower the rare disease community. Get to know us.

Team

Craig Martin
CEO
Tim Ehrhard
Senior Director, IT
Lauren Alford
Senior Director, Marketing & Communications
Kathy O’Connor
Director, Corporate Engagement
Maria Della Rocca
Senior Director, Patient Services
Patrice Melluso, CMP, HMCC
Director, Meeting & Events
Daniel DeFabio
Director, Community Engagement
Shruti Mitkus, PhD
Director, Genetic Education and Navigation
Lara Bloom
Strategic Advisor
Lisa James
Associate Director, Strategic Advancement
Nikki Berry
Senior Manager, Brand
Pam Todd
Educational Resource Strategist
Rachel Barron
Senior Manager, Patient Programs
Katherine Lim
Senior Manager, Digital Marketing
Parvathy Krishnan
Director, Foundation Alliance
Sravanthi Meka
Senior Manager, Content Marketing
Irie Long
Senior Project Coordinator
Frieda Hernandez
Manager, Engagement Programs
Kristin Soto
Manager, Development
Mary Morlino
RARE Concierge Patient Services Manager
Shankar Ramkellawan
Impact Analyst
Kayla Chandler, CMP
Associate Manager, Meetings and Events
Scarlett Leone
Project Manager, Events
Effie Parks
Community Engagement Coordinator
Shelby Carney
Program Manager
Claire Macht
Program Manager
Nick Ehly
Program Coordinator
Mindy Gikas
Human Resources Advisor

Board of Directors

Nicole Boice
John F. Crowley
Christina Hartman
Hugh Hempel
Neil Kumar
Caroline Loewy
Brad Margus
Indu Navar
Peter J. Pellizzon
Board Chairman
Katie Stevens

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Global Genes
[email protected]
28 Argonaut, Suite 150
Aliso Viejo, CA 92656
Phone: (+1) 949-248-RARE (7273)
Copyright © 2021 Global Genes.
Global Genes is a non-profit 501(c)(3) corporation advocating for rare disease globally.
EIN: 26-3331487

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