Our Team

We’re led by a team of passionate people who strive to empower the rare disease community. Get to know us.

Team

Tiffany Leite

Chief Operating Officer

Christian Rubio

VP of Community Development and Digital Engagement

Meredith Cagle

Senior Director of Patient Engagement

Kathy O’Connor

Director of Corporate Engagement

Ashley Yee

Director of Patient Education

Rose Mary Moegling

Director of Marketing

Melissa Strodtbeck

Senior Finance Manager

Maureen McArthur Hart

Strategic Advisor

Lisa James

Technology Manager

Nikki Berry

Creative Manager

Seth Fritts

Corporate Engagement Manager

Mollie McLaughlin

Meeting and Event Manager

Devon Pfeil

Digital Marketing Manager

Danielle Thompson

Program Manager, Content Development

Laura Borruso

Program Coordinator

Kanoe Fragas

Event Coordinator

Kristin Soto

Development Coordinator

Jay Singh

Graphic Design Coordinator

Brynn Dickson

Administrative Assistant

Jane Nicholson

Program Assistant

Board of Directors

Nicole Boice

Wendy White

Natalie Douglas

Board Vice Chair

John F. Crowley

Hugh Hempel

Caroline Loewy

Brad Margus

Craig Martin

Peter J. Pellizzon

Nauman Shah

Susan Stein

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