2022 Rare Research Roadmap: The Road From Bench To Bedside

February 15, 2023

The road to rare disease treatment and research is not often a straight path.

This roadmap is designed to put you in the driver’s seat and in control of how to move your research forward. Whether you are an individual, advocate, or organization, this roadmap was created to help you better understand some of the potential routes to treatment and some of the key concepts that are part of these processes.

There are three ways you can use this resource:

  • Follow the map to help understand the overall journey
  • Access the additional information that is connected for an in-depth look at the options available to you and stories from those who have blazed a trail
  • Stop in at the School of Rare Research for great resources that can fill in any background information you need to know

Download the Roadmap

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