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Rare Toolkits

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Global Genes RARE Project

RARE Toolkits provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients. RARE Toolkits are being created in collaboration with key rare disease stakeholders that have developed a vast array of subject matter expertise and believe in the importance of sharing these best practices. RARE Toolkits are interactive and will continue to evolve as advocates share additional best practices around specific topics. These important resources are being made available online, as a print version that can be downloadable in a PDF format, and in print. If you don't see a topic that you need or if you are interested in collaborating around a specific topic, please contact us.

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Coming Soon: HOW TO ADVOCATE ON A LOCAL LEVEL
Royalty-Free Stock Photography by Rubberball.com
Coming Soon: UNDERSTANDING GENE THERAPY
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Coming Soon: HOW TO FACILITATE A SUPPORT GROUP
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Coming Soon: STRATEGIES FOR EFFECTIVE FUNDRAISING
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Coming Soon: ADVOCATING FOR YOUR RARE DISEASE ON CAPITOL HILL (2016)
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Coming Soon: INFORMING HEALTHCARE PROFESSIONALS ABOUT RARE DISEASE

World Headquarters
28 Argonaut, Suite 150
Aliso Viejo, California 92656
949.248.RARE