2022 RARE Meet-up Grants Highlight Video

April 3, 2023

Congratulations to the five organizations who received the 2022 RARE Meet-up Patient Impact Grants, which include financial and additional planning and resource support to help make their in-person meetings a reality.

Bleeding Disorders Alliance of Illinois hosted a meet-up for people with rare bleeding disorders in Illinois, Indiana, Wisconsin, and Missouri.
Congenital Hyperinsulinism International (CHI) hosted its first ever regional meet-up in Southern California.
Helping Hands for GAND held their 3rd GAND Gathering & Scientific Conference.
Phelan-McDermid Syndrome Foundation hosted a Family Camp weekend retreat for families of children.
Youngtimers brought together co-founders, patient advisory board members, and other stakeholders for a critical in-person capacity building weekend.

See highlights from these 5 meet-ups and what the organizations accomplished through their events:

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