Actionable Steps to Improve Diverse Engagement in Clinical Trials — Health Equity Forum 2023

Actionable Steps to Improve Diverse Engagement in Clinical Trials was a session during the 2023 RARE Health Equity Forum.

Women of Color have the highest prevalence and worse outcomes for sarcoidosis, a rare disease. In an effort to address this issue, FSR launched a national awareness campaign, Ignore No More, resulting in over half a million media impressions in just 5 months. Phase II of the Ignore No More Campaign, was focused on Advancing Clinical Trial Equity (ACTeNow). FSR conducted several initiatives to better understand what steps we need to take to improve representation of the black community in clinical trials. From this case study, learn how to build effective health equity national campaigns from concept all the way to the halls of Congress and be a part of the actionable recommendations.

Speaker:
Mary McGowan
CEO, Foundation for Sarcoidosis Research