Coordinating Complex Care was part of the Empowering the RARE Individual track during the RARE Advocacy Summit, September 19-21, 2023 in San Diego, California
Learn to navigate the challenges of RARE care, including the essential role of finding a physician who can serve as quarterback, how to improve communication, work across institutions, navigate insurance and sort through the pros and cons of centers of excellence.
Moderator:
Effie Parks
Coordinator, Community Engagement, Global Genes Panelists:
* Nicole Glenn, MD
Pediatrician and International Delegate, Yellow Brick Road Project
* Parvathy Krishnan
CEO, Krishnan Family Foundation
* Kristy Dickinson
RARE Patient & Founder, Chronically Simple
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