Coordinating Complex Care: 2023 RARE Advocacy Summit Session
October 12, 2023
Coordinating Complex Care was part of the Empowering the RARE Individual track during the RARE Advocacy Summit, September 19-21, 2023 in San Diego, California
Learn to navigate the challenges of RARE care, including the essential role of finding a physician who can serve as quarterback, how to improve communication, work across institutions, navigate insurance and sort through the pros and cons of centers of excellence.
Coordinator, Community Engagement, Global Genes Panelists:
* Nicole Glenn, MD
Pediatrician and International Delegate, Yellow Brick Road Project
* Parvathy Krishnan
CEO, Krishnan Family Foundation
* Kristy Dickinson
RARE Patient & Founder, Chronically Simple
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