Data Tech For RARE Care: Patient Advocacy Summit Session

Data Tech For RARE Care was part of the Skillbuilding Track at the Patient Advocacy Summit in San Diego, California September 12-14, 2022.

Kristy Dickinson and Kat Inston joined moderator Ryan Sheedy to talk about how technology can help care for those diagnosed with a rare disease.

PHI apps and tools–end users speak on what data you should want to collect and the importance of data.

Moderator: Ryan Sheedy, Rare Disease Caregiver and Founder, Mejo
Panelists:
• Kristy Dickinson, Founder and Managing Director, Chronically Simple
• Katheron Intson, CEO, Varient, University of Toronto