Developing Scientific Expertise to Drive Research Strategy — 2023 RARE Advocacy Summit

As part of the Becoming a Research Ready Organization track from the 2023 RARE Advocacy Summit, this panel will demonstrate how to find and engage scientific advisors and expert researchers, build a scientific advisory board, and recruit a full-time or shared scientific director.

Developing Scientific Expertise to Drive Research Strategy

Moderator:
Luke Rosen, MS
Founder, KIF1A.ORG

Panelists:
* Ron Garber
Co-Founder and President, The Yaya Foundation for 4H Leukodystrophy

* Yssa DeWoody
Co-Founder, Treasurer, Director of Research, Ring 14 USA