Emerging Rare Policy Issues: 2023 RARE Advocacy Summit Session

October 26, 2023

As part of the Legislative Action track from the 2023 RARE Advocacy Summit, the EveryLife Federal & State Policy Team provided an overview on current policy issues that impact the rare disease community during the Emerging Rare Policy Issues session.

Shannon von Felden
Senior Director of Advocacy, EveryLife Foundation for Rare Diseases

Emily Stauffer
State Policy Manager, EveryLife Foundation for Rare Diseases

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