Emerging Rare Policy Issues: 2023 RARE Advocacy Summit Session

As part of the Legislative Action track from the 2023 RARE Advocacy Summit, the EveryLife Federal & State Policy Team provided an overview on current policy issues that impact the rare disease community during the Emerging Rare Policy Issues session.

Moderator:
Shannon von Felden
Senior Director of Advocacy, EveryLife Foundation for Rare Diseases

Panelist:
Emily Stauffer
State Policy Manager, EveryLife Foundation for Rare Diseases