As part of the Community & Capacity Building track from the 2023 RARE Advocacy Summit, this panel talks about how to increase your reach and navigate international research, regulatory agencies, and healthcare systems.
Rare diseases know no borders. To find larger patient populations and be more inclusive, it is necessary to look beyond your home country.
Moderator:
James O’Brien
President/Chair, Director, CEO, International Prader-Willi Syndrome Organization
Panelists:
* Bojana Mirosavljevic
Director, Rare Disease Patient Advocacy Strategy, ICON plc
* Arik Johnson, PsyD
Chief Mission Officer, HDSA
* Michelle Davis
Executive Director, International FOP Association
Stay Connected
Sign up for updates straight to your inbox.