As part of the Community & Capacity Building track from the 2023 RARE Advocacy Summit, this session offers ways for advocacy organizations can support their community members through financial resources.
Rare disease has a big impact on your financial well-being. This session will highlight resources available to help patients and caregivers with healthcare costs, disability, and tax-advantaged savings accounts for individuals with disabilities known as ABLE accounts.
Moderator:
Mary Morlino
Manager, RARE Concierge Patient Services, Global Genes
Panelists:
* Brian Altounian
Financial Planner and Special Needs Dad, Just Two Dads Podcast
* Tiara Green MSEd
Interim CEO, Accessia Health
* Erin Bradshaw
Chief of Mission Delivery, Patient Advocate Foundation
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