Finding Your Flock: Emerging Opportunities to Accelerate Research Through Disease Community Collaborations 2023 RARE Advocacy Summit
October 27, 2023
Finding Your Flock: Emerging Opportunities to Accelerate Research Through Disease Community Collaborations was the opening plenary on the second day of the RARE Advocacy Summit, September 19-21, 2023 in San Diego, California.
Learn how rare disease communities have collaborated in ways big and small to support strategic planning, implement shared laboratory and clinical research studies, and identify and address critical challenges in therapeutic development. Concrete case examples highlight the benefits of identifying rare disease partners based on shared symptoms, shared
disease biology, and organizational maturity.
Karmen Trzupek, MS, CGC
Senior Director, Scientific Programs, Global Genes
• Scott Demarest, MD
Associate Professor, Children’s Hospital of Colorado
• Eric Sid, MD
Program Officer, National Center for Advancing Translational Sciences Division of Rare Diseases Research Innovation, National Institutes of Health
• Jillian Shaw, PhD
Scientific Advisor, Broad Institute
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