How to Ensure Diverse Patient Participation in Clinical Trials and Research– Health Equity Forum 2023

Understanding the Patient Perspective – How to Ensure Diverse Patient Participation in Clinical Trials and Research was a session at the 2023 RARE Health Equity Forum.

Improving equity in clinical trials and research requires considering barriers to patient participation at multiple levels and identifying strategies to help address specific issues at each level. In this session, panelists discuss how patients can/should be on the front lines with their community ecosystem, and what that relationship should look like between community leaders and researchers.

Moderator: Mary McGowan CEO, Foundation for Sarcoidosis Research

Panelists:
* Maria Santaella, PhD(c), MSN, RN-BC, CPHON
VP Research, National Hemophilia Foundation

* Yasmeen Long, MA
Director, FasterCures

* Trudy Nyakambangwe
Founder, Child And Youth Care Zimbabwe

* Lolita Smith-Moore, MA
Program Manager, Rare Disease Diversity Coalition