Integrating Clinical & Patient Reported Data: RARE-X Exchange

Integrating Clinical & Patient Reported Data was part of the 2024 RARE Drug Development Symposium’s RARE-X Users Forum

Moderator:
Zohreh Talebizadeh, Ph.D.
Senior Director, RARE-X Research Program, Global Genes

Panelists:
* Scott Demarest, M.D.
Assistant Professor, Pediatrics & Neurology, Children’s Hospital Colorado

* Yssa DeWoody, Ph.D.
Co-founder & Director of Research, RING14 USA

* Vanessa Vogel-Farley
Senior Director, Research & Data Analytics, Global Genes

* Kelly Wentworth
Associate Manager, RARE-X Research Program, Global Genes