It’s All of Us Against the Disease — 2023 RARE Advocacy Summit

This plenary panel, It’s All of Us Against the Disease: The Future of Research Collaborations and Disease Community Consortiua opened the final day of the 2023 RARE Advocacy Summit.

Data pooling and aggregation of multi-sourced data can speed progress in research. Challenges to this approach may not stem not from technology or science, but from human nature. Hear directly from change agents driving these multi-stakeholder consortiums about their challenges and successes.

Moderator:
Katherine Maynard
Partner, PWR

Panelists:
* Ryan Colburn
Principal, odimm, inc

* Carole Bakhos
Project Director, Jordan’s Guardian Angels

* Adam Staffaroni, PhD
Assistant Professor, University of California, San Francisco