Looking for Answers in Uncertainty: Managing When There is No Diagnosis or Prognosis

February 11, 2021

This session from the 2018 Patient Advocacy Summit tackles a topic that is all too common in the rare disease community: managing symptoms, lifestyle and mental health when there is no diagnosis or prognosis.


Kimberly Bower, MD
Chief, Palliative Medicine Division, Rady Children’s Hospital-San Diego
Medical Director of Pediatric Program, Scripps Hospice

Caroline Loewy, MBA
Co-Founder and Board Member. KCNQ2 Cure Alliance

Hilary Savoie, PhD
Founder and Co-Executive Director, The Cute Syndrome Foundation

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