Medical Gaslighting: 2022 RARE Health Equity Summit

November 15, 2022

What is medical gaslighting? This breakout addresses the barriers that rare disease patients face when speaking to healthcare providers, including dismissal of health concerns and symptoms, accessing the best medications and treatment, and the challenges underserved populations in particular may encounter.

The RARE Health Equity Summit, hosted by Global Genes in partnership with the Rare Disease Diversity Coalition (RDDC) convenes all stakeholders in the rare disease community to identify collaborative efforts to address inequities in the care of patients with rare diseases, specifically focusing on reducing disparities, discrimination, and biases felt by patient communities. The 2022 Health Equity Summit was held in Atlanta, Georgia.

Mia Keeys
Director of Federal Affairs, Hologic, Inc

* AudreyStephannie Maghiro
Research Coordinator, Undiagnosed Diseases Network (UDN)

* Nafisa Iqbal
Activist-Writer, MFA Candidate, Columbia University

* Gina Lundberg, MD FACC FAHA
Clinical Director, Emory Women’s Heart Center Associate Professor of Medicine, Emory University School of Medicine

* Luisa Leal
Founder & CEO, The Akari Foundation

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