Mental Health for RARE Adults: Patient Advocacy Summit Session
May 16, 2023
Mental Health for RARE Adults was part of the RARE Adults track at the Patient Advocacy Summit in San Diego, California September 12-14, 2022.
Wendy Erler, Dakota Fisher-Vance, Adam Johnson, and Dr. Al Freedman join David Rintell to discuss how we can normalize and increase access to mental health care for adults diagnosed with RARE disease.
How can we normalize and increase access to mental health care for adults diagnosed with RARE disease?
David Rintell, Vice President, Head of Patient Advocacy, BridgeBio
• Wendy Erler
Vice President, Patient Experience and Patient Advocacy, Alexion AstraZeneca Rare Disease
• Dakota Fisher-Vance
Global Patient Advocacy Senior Manager, BioCryst Pharmaceuticals, Inc.
• Al Freedman, PhD
Psychologist, Freedman Counseling Associates
• Adam Johnson
Host of ‘Parents as RARE’ Podcast
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