Partnerships in Action was part of the 2024 RARE Drug Development Symposium’s RARE-X Users Forum
Moderator:
Charlene Son Rigby
CEO, Global Genes
Panelists:
* Emily Bonkowski, Ph.D. Candidate
Genetic Counselor & Research Program Coordinator, St. Jude Children’s Research Hospital
* Alexandra Gillett, Ph.D.
Board Member, Wiedemann-Steiner Syndrome Foundation
* Jeff De’Angelo
President & Founder, CHAMP1 Foundation
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