Videos

Partnerships in Action — RARE-X Exchange

June 26, 2024

Partnerships in Action was part of the 2024 RARE Drug Development Symposium’s RARE-X Users Forum

Moderator:
Charlene Son Rigby
CEO, Global Genes

Panelists:

* Emily Bonkowski, Ph.D. Candidate
Genetic Counselor & Research Program Coordinator, St. Jude Children’s Research Hospital

* Alexandra Gillett, Ph.D.
Board Member, Wiedemann-Steiner Syndrome Foundation

* Jeff De’Angelo
President & Founder, CHAMP1 Foundation

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