Power of Being Counted Author Discusses New Estimate for Rare Diseases

June 22, 2022

Kirk Lamoreaux, Senior Healthcare Strategist, discusses ‘The Power of Being Counted,’ a report that was recently announced an estimated 10,867 rare diseases are known.

As Mr. Lamoreaux explains, ‘The Power of Being Counted’ was developed by RARE-X to determine a more accurate count of the actual number of rare diseases. Determining this number is difficult, largely due to the lack of a global definition for rare disease. Getting an accurate count is important in order to represent the full spectrum of the rare disease community and describe the true socioeconomic impact on the lives of patients, families, and society.

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