Videos

RARE Storytelling Webinar

July 24, 2024

On July 16th, Global Genes hosted a RARE Storytelling Webinar for those in the rare disease community to learn how to share their story through blog posts, podcasts, films, and more featuring expert presenters from Courageous Parents Network, EveryLife Foundation, and The Mighty. See below for the full workshop session:

 

View and download this workshop’s slides and notes below:

Storytelling Workshop July 20224.pptx

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