RARE-X and Federated Data

July 17, 2020

A quick video overview of RARE-X and how it is using Federated Data to help patients and researchers.

Metamorphosis Mine: a RAREly Told Stories Film about Scleroderma

In February of 2024, Global Genes together with The Disorder Channel presented a workshop, RAREly Told Stories, […]

On August 15th, Global Genes hosted the webinar “Showing Up 101”. This session is a gently guided, […]

In February of 2024 Global Genes together with The Disorder Channel presented a workshop, RAREly Told Stories, […]

On July 16th, Global Genes hosted a RARE Storytelling Webinar for those in the rare disease community […]

Partnerships in Action was part of the 2024 RARE Drug Development Symposium’s RARE-X Users Forum Moderator: Charlene […]

Unlocking Insights Together: The Power of Data Collaboration was part of the 2024 RARE Drug Development Symposium’s […]

Integrating Clinical & Patient Reported Data was part of the 2024 RARE Drug Development Symposium’s RARE-X Users […]

On June 11, 2024, Global Genes hosted a forum for stakeholders in the rare disease community to […]

On June 11, 2024, Global Genes hosted a forum for stakeholders in the rare disease community to […]