RDDS 2024 — Day 2 Welcome

June 7, 2024

Charlene Son Rigby, CEO of Global Genes, gives a recap of the first day and gives an introduction of what to expect for Day 2.

Charlene Son Rigby
CEO, Global Genes

Life Through A Lens: A RAREly Told Stories Film

Jeff Levenson submitted his film, “Life Through A Lens,” about a Hollywood photographer who has Adult polyglucosan […]

Lori Renna Linton made the film, “Pass Me The Potatoes, Please” about Hereditary Spastic Paraplegia (HSP) and […]

What financial assistance resources and services are available to you? As a part of our Financial Assistance […]

In February of 2024 Global Genes together with The Disorder Channel presented a workshop, RAREly Told Stories, […]

In February of 2024, Global Genes together with The Disorder Channel presented a workshop, RAREly Told Stories, […]

On August 15th, Global Genes hosted the webinar “Showing Up 101”. This session is a gently guided, […]

In February of 2024 Global Genes together with The Disorder Channel presented a workshop, RAREly Told Stories, […]

On July 16th, Global Genes hosted a RARE Storytelling Webinar for those in the rare disease community […]

Partnerships in Action was part of the 2024 RARE Drug Development Symposium’s RARE-X Users Forum Moderator: Charlene […]